Hope for Charli: SA family turns to community support to fight rare, terminal childhood disease
Charli’s father says she is the only kid in Texas with this particular variant: CLN6 Batten disease. SAN ANTONIO — Charli is fighting an extremely rare and terminal condition often referred to as childhood dementia at just five years old. Charli qualifies for a gene therapy trial in California through the Charlotte and Gwenyth Gray … Read more