SA family of 4-year-old girl with terminal disease, needs community’s support for gene therapy trial
Charli’s mom Stevi Ashcraft says her daughter is the only child in San Antonio with CLN6 Batten Disease. SAN ANTONIO — Charli is fighting an extremely rare and terminal condition often referred to as childhood dementia at just 4-years-old. Charli qualifies for a gene therapy trial in California later this year but she needs the … Read more